Enhertu.
Look it up. That is what they are aiming for to treat this disease. As long as my echocardiogram comes back good.
Since May 30, my hospital admittance, I have had like two
days when I didn’t have to get up early and leave, go to work, or deal with
medical.
I am now looking at a stretch of medical freedom. Next appointment
June 30th.
I am scared to be tired, scared to say I am tired because it
makes people worry. But this is exhausting and I have so much left to come.
I am going to start adding videos to this blog. Maybe when I
head into procedures. I know, I know, I have said this before. I mean it
though.
I have done a lot of research on this treatment and while the
nurses and doctor were confident I won’t lose my hair, it’s gonna happen. Most
women do or go 50% bald. 50%? Who wants to have missing patches of hair.
I’ll buzz it and wear a hat or wig.
I’m too old to worry about how I look.
Plus, I have seen Threads and The Day after too many times
to want to look like a nuclear war survivor.
Today was my brain MRI. I really, really didn’t want one, especially
after Ron (My kids dad) but my oncologist was like, “This is not an option’. Apparently
my HER 2 disease often drops some mets on the brain. Great.
She said no worries it will all the same genetic make up
that’s in my breast. The treatment will target it.
First ever MRI. No one told me about them. I am typically
not a high anxiety person, but this made me crazy. No music, just a loud bunch
of noises for twenty minutes, Click-click-bang-bang-buzz. Then another ten
minutes with contrast.
If you ever have seen The Strain, I felt like Gus’ mother
when she turned. When he put the helmet on his mother. Then it was like they were rolling me into a
coffin. My writer mind kept thinking, what if this is all an illusion and I am
in a coffin or being cremated.
Side note. It’s time to watch The Strain again for the eighth
time.
If I have to get another MRI, there’s gonna have to be
another way. That was horrible.
I really hope my heart is okay. I want to do this treatment.
It’s so promising., I have high blood pressure, so suffice to say I am nervous.
But that echo comes on the 30th.
On the good news front, I have been very creative lately.
I finished the ten book compilation which I hope to be out
tomorrow, and I wrote a demented children’s book.
These past couple months of worrying, health issues, waiting
for appointments have slowed my writing process and as I said, that in turn
slowed my income to almost a halt.
A Go Fund me is out of the question. I can work for it. I’d
rather earn it. That’s the reason for the compilation. The Children’s book will
be a special link. It will be free and if you want you can do the ‘Buy me a
Coffee’ thing, if not, I’m cool with giving it for free.
I am so looking forward to the week free of doctors and
nurses. I am watching 3 of my grandkids tomorrow. I know, everyone says not to,
my friends with best intentions, but I want to.
The ones I am watching can get their own drinks and soon
enough, when I start treatment, I will be tired Nennie.
No, wait.
I’m gonna defy the odds. Mind over matter.
I won’t let this bring me down. Yeah, of course, there will
be effects that are not fun, but many people push through and keep working,
keep going.
I will.
FEELING TODAY: I’m alright
MUSIC: Fix you (Cover) Boyce Avenue
GOAL: Write. Name my newest book.

You have always been a trooper and so this is nothing but one more speed bump on your road through this life. I did buz my hair off and did not even wear a hat! Sadly I live in AZ and got badly sunburned YUCK so do not try a day at the beach without a hat! Sending up prayers for strength and good results of the treatment. Remember, no matter what...you never walk alone. KC or KaaCee as my facebook got hacked once upon a time!e
ReplyDeleteThank you so much!
DeleteOpen MRI. You may have to go farther to get it. I think I’m strange-I had a full spine mri with and without contast and I think I found why people meditate. The two since did not give me that, lol
DeleteI know you're going to fight this disease but I ask one thing of you. Let people help you, sometimes they need it more than you. So when you are tired Nennie, let the grands help. They'll love taking care of you!
ReplyDeleteThat sucks...I always got a little Xanax and music of my choice for MRIs. It helps.
ReplyDeleteMRIs are a peace of cake compared to the PET scan. I had to have 3 of those. It was painless but didn't give me the warm fuzzy feeling when they brought in the contrast in a lead lined box. The the nurse says it's ok it doesn't have enough radioactive material to hurt you. I was thinking sure it doesn't you just put it in lead because it is a fun way to transport it. I guess he was right because I am still alive and didn't get radiation poisoning 🙃 Hang in there.
ReplyDeleteHi Jackie 👋 I hope the next two weeks without appointments go by slow so they feel longer 💕 enjoy your time with your grandkids, relax and cuddle with them and if they’re young enough, watch Harold and the Purple Crayon 🥰 I know that you’ve received so many well-wishes and advice from many wonderful people, so I’d just like to add that you are awesome, you’ve got this, and you are loved 😘 Best, Christine
ReplyDeleteHi, bummer about your MRI. I have always had my choice of music. However, I have not had a brain scan either. Best of luck with results. Yes, you got this! I’m also looking forward to your new book.
ReplyDeleteI had a MRI of the brain about 6 months ago and was surprised at how loud it was. I wouldn't have been able to hear music anyway.If there is another one get it at a freestanding Open MRI facility. Much kinder.
ReplyDeleteAs I said in my message, I recently went through BCA treatment also. Like you it was a revelation in the cost just in co-pays and the surprise bills from doctors I never met. Being retired and on SS I have been thinking about part time work. I hate the thought but it may come to that. At least I can talk to my younger sister who had the same diagnosis as you . She did great and si will you.
ReplyDeleteI had an MRI a few years ago. There was something unusual about my hormones and my pituitary gland. That clanging tunnel did a number on my nerves. I can understand your anxiety and writer’s imagination about the experience.
ReplyDeleteAbsolutely be surrounded by the little ones if you are up to it. When you are not feeling it, have someone nearby to take over.
I am praying for you my friend. I pray for God’s Grace and that He heals your body of this disease. In Jesus name I ask for this blessing.
Jackie no wigs u will look adorable wear some fun scarfs u can wear it very well wigs are to hot ,annoying, and itchy lol ill take care of the hair and tell u what to wear trust me!!! 💪💪💪💪💪💪🩷🩷🩷🩷🩷🩷
ReplyDelete