Tests, Tests, and more Tests

Enhertu.

Look it up. That is what they are aiming for to treat this disease. As long as my echocardiogram comes back good.

Since May 30, my hospital admittance, I have had like two days when I didn’t have to get up early and leave, go to work, or deal with medical.

I am now looking at a stretch of medical freedom. Next appointment June 30th.

I am scared to be tired, scared to say I am tired because it makes people worry. But this is exhausting and I have so much left to come.

I am going to start adding videos to this blog. Maybe when I head into procedures. I know, I know, I have said this before. I mean it though.

I have done a lot of research on this treatment and while the nurses and doctor were confident I won’t lose my hair, it’s gonna happen. Most women do or go 50% bald. 50%? Who wants to have missing patches of hair.

I’ll buzz it and wear a hat or wig.

I’m too old to worry about how I look.

Plus, I have seen Threads and The Day after too many times to want to look like a nuclear war survivor.

Today was my brain MRI. I really, really didn’t want one, especially after Ron (My kids dad) but my oncologist was like, “This is not an option’. Apparently my HER 2 disease often drops some mets on the brain. Great.

She said no worries it will all the same genetic make up that’s in my breast. The treatment will target it.

First ever MRI. No one told me about them. I am typically not a high anxiety person, but this made me crazy. No music, just a loud bunch of noises for twenty minutes, Click-click-bang-bang-buzz. Then another ten minutes with contrast.

If you ever have seen The Strain, I felt like Gus’ mother when she turned. When he put the helmet on his mother.  Then it was like they were rolling me into a coffin. My writer mind kept thinking, what if this is all an illusion and I am in a coffin or being cremated.

Side note. It’s time to watch The Strain again for the eighth time.

If I have to get another MRI, there’s gonna have to be another way. That was horrible.

I really hope my heart is okay. I want to do this treatment. It’s so promising., I have high blood pressure, so suffice to say I am nervous. But that echo comes on the 30^th.

On the good news front, I have been very creative lately.

I finished the ten book compilation which I hope to be out tomorrow, and I wrote a demented children’s book.

These past couple months of worrying, health issues, waiting for appointments have slowed my writing process and as I said, that in turn slowed my income to almost a halt.

A Go Fund me is out of the question. I can work for it. I’d rather earn it. That’s the reason for the compilation. The Children’s book will be a special link. It will be free and if you want you can do the ‘Buy me a Coffee’ thing, if not, I’m cool with giving it for free.

I am so looking forward to the week free of doctors and nurses. I am watching 3 of my grandkids tomorrow. I know, everyone says not to, my friends with best intentions, but I want to.

The ones I am watching can get their own drinks and soon enough, when I start treatment, I will be tired Nennie.

No, wait.

I’m gonna defy the odds. Mind over matter.

I won’t let this bring me down. Yeah, of course, there will be effects that are not fun, but many people push through and keep working, keep going.

I will.

 

FEELING TODAY: I’m alright

MUSIC: Fix you (Cover) Boyce Avenue

GOAL: Write. Name my newest book.

Preparing and Waiting

 So here we are. 48 hours from finding my fate of treatment. That is a heavy load to carry, emotionally. The worry is a lot. I’ve done a lot of praying and I know it is, what it is and nothing I can do to change the past on the future.

I wonder if Tuesday is the day I will cry about it. I haven’t yet. The tears I have shed have been tears of being touched by the outpour of love and support of others and the moments when I think about how I am never going to be able to afford the care to get well.

Hopefully, I’ll get approved for the supplement.

I don’t mean to be such a Debbie Downer, I am trying to keep these blogs hopeful and light, but I want everyone to know what I am feeling and going through.

Eventually I will do some video reels.

I don’t know what Tuesday will bring. I stopped checking my app to see if biopsy results are in. If they were I am sure I would google and put myself in a state. I’ll let the doctor tell me.

I am giving it to God to handle my fear of finding out that there’s nothing they can do.

My friend, Katie assured me there will be a plan of action. I pray that all the stories I hear about the advancement of treatments are true.

I know I’m rambling and rattling my emotions. I am sure these blogs will get more intense

Today was a good day. I mean it really was. I worked at the church and it was candidate Sunday. Meaning they found a permanent pastor and the mystery pastor came today to preach. This person was invigorating and the energy in the church was amazing.

Again, a goal. the New Pastor starts in July and I am so excited to work with them. I love having goals.

So many people have been so kind offering help. I plan on taking people up on that. I really do, so if you offered don’t be surprised if I call.

As for now, at the time of penning this … I need a nap!

 

FEELING TODAY: Worried but Good

MUSIC: Brave by Sara Bareilles

GOAL: Format the Broken Compilation